Note: I originally planned to blog our redo of our son Chich's
room, but along the way found a more important message. As many of you
know our son Chich (Christian) is a person with Asperger's Syndrome
(Autism). He is bright, loving and a very talented artist. We
believe that while autism brings many challenges, there are an equal amount of
gifts. We all have worked hard to instill coping and social skills to
allow him to live in a world that is foreign to his own sense of being.
So with his dislike of change and refusal to allow even a coat of paint (which
we have been trying to do for 10 years), this was going to require a lot of
effort and planning.
Michael and I are schemers. Okay, I am a big schemer; Michael just
goes along with my plans. We have lived in our house for ten years and
our younger son has refused to allow us to update his room. There are
only two rooms in our house that have not been repainted and redecorated -
Chich's room and the office. The office was in use the day we arrived as
our online business was first priority, no time to redo. Now Chich works
from home and uses it full time and we still run our online business as
well. It will take a lot of planning and some fast action to ever redo
the office.
So, Chich's room was a better target. Let me just say how much work is
involved with a room that hasn't been touched in ten years. Our son does
not like change or to get rid of anything. Recently, he has begun to
"get into" what he wears and changed his hair. He has a great
job that he loves. He is growing up! Just before he left, he agreed
to go through his clothes with me and get rid of the ones he doesn't wear any
longer. He was brutal! This has not been done since high
school. He got rid of four trash bags - more than I would have! I
knew the time had come. Time to clean up his room and give him a new
start.
Chich said he wanted to go visit his brother for a few days, and I was
delighted. The wheels started turning (since I am currently home and not
working this summer). We put our son on the train and we were off!
Michael took Friday off from work to allow us enough days to do the big
job. We headed to Wal-Mart to pick up a few things and went home to clear
out the room.
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All of his belongings moved to the guest room |
Thursday Evening - The clean out. Everything was pulled from the
room. No time to sort it now, just group it and move on. I gave up
cleaning Chich's room when I went back to school full time (and working full
time). I figured if he wanted to live that way, I wasn't helping him
by cleaning up after him. After a few swamp outs through the years and
some touch up cleaning, the room was out of control. I told myself cleaning this out
wasn't mean, but as an unhealthy environment it was necessary (mental gymnastics for
justification).
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The dirty walls and HUGE hole to be patched |
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Friday - Cleaning and prepping. We headed to Home Depot and Target to
try to get a few pieces to replace those that were damaged and so old we didn't
want them to return. I had looked online and found a few; of course they
do not have ANYTHING like those items in the store. I won't worry about
that right now. Time to get the paint, blinds, and stuff to fix up the
place.
First, was scraping the popcorn ceiling. We wet it with a little water
and it came off great!
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No more popcorn! Down to the drywall. |
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Next came washing the walls. Oh my!
That was a job: washing the walls, the closet organizer and the trims.
Michael had the fun job of patching a huge hole that an angry teenager not
wanting to get up one school morning had kicked a few years ago (it had been
strategically covered with a poster all this time). This was a lot of
patching those holes from posters and general teenage use.
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Texturing added to the ceiling |
By the evening we were ready to texture the ceiling and the patch
areas. What a messy job. I was covered in it!
Showered and ready for the next part.
Paint. Put the first coat on the walls and I am done. Tomorrow is
another day.
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Paint on the walls and ceiling, nice and clean |
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Saturday - I am one sore woman! No time for wimps, so back to
painting. We are on a tight timeline and Chich's return will mean the end
off all production. The ceiling soaked up a ton and I was worried that
two gallons wouldn't be enough. Whew! Just made it!
Crown moulding. This is Michael's thing. I am happy to hold it
in place, help you measure, even touch up the paint, but that is it. It
is funny after doing so many of these projects, we each have our niche. I
scrape the ceiling, paint, plan the arrangement (make scaled down drawings of
room and furniture on graph paper), decorate and clean. Michael sands and
paints all trim, electrical, crown moulding and light fixtures.
I am starting to feel the crunch. I don't think we will finish before
we have to bring Chich home. There is always so much hurry up and wait
with these types of projects along with the unexpected along the way. It
seemed that everything we planned was taking three times as long as we
thought.
Sunday - Well, here we are. Michael was called into work, so all work
has stopped. Why? Because we are at the point of Michael needing to
do his stuff before I can load the room. So, I am using this time to
sort, prepare, assemble and straighten the rest of the house. Best laid
plans, right?
Our evening was full and we didn't get to bed until 12:30 am! We ended
the evening by cleaning the carpet. Tomorrow is going to be a busy day.
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Gaming Cabinet |
Monday - Michael is back at work. By afternoon, the crown moulding was finished and painted, blinds up, trim painted and
all areas touched up. Now it was time to start bringing in Chich's stuff
and create the room. All of his furniture had to be trashed. It was
worn, broken and tired from the many years of boy abuse. This was the
stuff we had put in when our boys were little! To keep the cost down, we
moved three bookcases from the fabric room and a cabinet from the
workshop. We drilled holes in the back for cords and such since we would
use it as a media cabinet. The end tables were new from Target.
These were solid and look great in the space.
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Decluttered closet |
THE BIG REVEAL!
We brought Chich home from the train station. He was hungry, tired and
his feet hurt (problem with his shoes). Now here is where you other
parents with children with autism will be nodding your head in
agreement.
Chich didn't want to go see the room. He saw his old TV in the dining
room (we could not take it out, too big), so he knew something was up.
Chich does not like change, new things or letting go of items. I have
tried to balance my need for neatness and streamlined living with his need for
consistency and items. Life is change, so it would not help him to live
in a bubble, but I do understand his needs and bend quite a bit.
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New bookcases, blinds, curtains and crown moulding |
I convinced him (begrudgingly) to come see the new space. He stood in
the doorway and pronounced he hated it. "It isn't my room, how dare
you." I am not put off by this; this is not my first rodeo. I
explained that these were all his things and that I did not remove them (only
the trash). He then expressed that he was sad not to have the old
furniture (albeit broken and not serving their original purpose) because it is
what he has always had. He was emotionally attached to it. I get
it.
In our family, you are allowed to express your opinions, but you must
support it with details. So, instead of Chich saying, "I hate
it," examples and descriptions are required. He said the furniture
was too boxy. I get that, I explained that I blended the squareness of
the nightstands with the curves of the lamps and lampshades (all to mimic the
design in the bedding). He did say he liked the bed and was happy to have
sheets that would stay on his thick mattress. My argument that the room
is a healthy place to sleep and live now free of dust and dirt were
dismissed. The longer he stood looking in the space, the more irritated
he became. I relented and he returned to the office to have some dinner and work.
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The bed and nightstands |
Now some of you may think we are mean to do all this to his room without his
knowledge and while he was gone. I have learned with Chich that it is
much harder and painful for him to live through the culling process, the
movement and upheaval of furniture and disruption to his routine. Whenever
we moved when the kids were little (which we did often), I would have their
bedroom finished and set up as quickly as possible. If their things were
set up (their beds and toys) it would lesson the trauma and comfort them in
some way. Their routines were always important to me. I do not
dismiss Chich's feelings, but as a mom I want to help him understand the need
for updates, cleaning and order. He has to live in a world where this is
common occurrence and is expected. Yes, he hates it now, as he has every
time I have changed anything in our home (or my hair or appearance). But
over time he adjusts.
I love my son. I am proud of him and have lived through years of
struggles and disappointments. Dropping out of college in his junior
year, only to land his dream job one month later disrupts my sense of world
balance. As a mom, we all want our children to be independent, successful
and happy. I could give in and allow him to avoid difficult situations
and dismiss it as necessary due to his Autism. I can't. I
won't. What I will do is help him understand that his feelings are valid,
but we must learn the ways to navigate through the world and develop skills to
do so. Being a jerk, not allowed. Doing something in a different
way or retreating from irritating envirnoments, totally okay. But
mostly, trying to get him to talk about it and diffuse his constant
stress. Normal transitional activities (having a job, talking with
someone, going to new places) have speed bumps we must acknowledge the steps and
discuss. Talking through situations and possible solutions allow him to map his responses which give him the "practice" needed before actually doing something. This is something we have done since he was little and continue today.
Yes, I push him. I push myself. I push my students. What
have I received in return? A greater understanding of different
viewpoints. Patience (thank you God), lots of patience. A lot of resistance,
and sometimes full blown fits, screaming and fights. There have been
great bouts of sadness when I realize there are some things that will always be
difficult (near impossible). But mostly, it has been an appreciation of small
victories. Although our family progress isn't on the normal age timeline,
it is a constant forward motion and milestones are achieved.
So, Chich has a new room and his response was not what we see on those home decorating
show reveals. No screams of excitement or big hugs and thanks yous.
I am cool with that. It was just another opportunity to move forward,
which we will continue to do every day.
Susan/Tia